Clara has had a tough week. She pulled out her tube a few times, her impetigo is back for about the 6th time, and she seems to be just plain cranky. We hate summer in this family, excessive heat makes us grumpy. It seems that the heat combined with the tape we use to keep her tube in adds up to her skin getting irritated and infected. This leads to use changing the tape every few days to let her skin breathe and recover (PS, it is Not. Working.) and the tape change leads to Clara and I crying and crying. She knows when it's coming, I think she sees the supplies sitting on the bed after bath time and she starts to get upset. And her cry has become more and more sad-instead of just a little kitty baby cry, she has started to sound so much more real when crying, like she knows what is going on. And it breaks my heart every time, because it's me causing this cry. It's the worst feeling in the world.
We did get to visit Uncle Nate and Aunt CC for dinner last night, and Clara was happy for several minutes in a row. I think it's because of the nice cool air that Nate, as a hardcore Wallace, so appreciates. If something happens to Todd and I, Clara needs to live with someone who really appreciates her need for industrial sized air conditioning units in private, single family homes. That's on you Nate, Sherrie and Papa.
Clara is also getting very determined to turn over, she's even attempting it while in Genevieve and then yelling and yelling at us when it doesn't work. When she's on the floor, she is so happy because she can turn to her side and she does it over and over, then falls asleep. She's learning so much, so fast, and we love watching her change and grow.
We're meeting with Cardiology tomorrow and hope for some help with getting us in to GI quickly. We need them to move her to a g tube in her belly, I can't keep torturing my baby girl with skin infections and tegaderm tape.
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